Living Well with Chronic Kidney Disease

Living Well with Chronic Kidney Disease: Coping Strategies for patients newly diagnosed with the condition

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Written by BFH Staff Writer on December 7, 2023

Mary, a vibrant woman in her 40s, was recently diagnosed with chronic kidney disease. As she grappled with the news, a mix of emotions overwhelmed her — fear, uncertainty, and the fear of navigating uncharted waters. Mary’s story mirrors the experiences of millions facing the challenges of CKD. Most of them have millions of questions in their mind related to the condition and what they can do to overcome the situation without stressing themselves. 

Chronic Kidney Disease (CKD) is a life-altering condition that affects millions of people worldwide. While managing the physical aspects of CKD is crucial, addressing the emotional and mental well-being of individuals living with this condition is equally important. This is because adjustment to a chronic illness like CKD can be emotionally challenging. The condition can be distressing as people with the condition often experience significant life changes. As a result, patients, as well as caregivers, can go through sadness, fear, anxiety, frustration, and anger. In some cases, people with CKD may require dialysis or a kidney transplant, which can further increase the anxiety and emotional distress of the patients and their caregivers. 

For all these reasons, emotional support is as important as medical support for people with CKD and their caregivers. It helps them manage their emotions, relieve stress, and improve their quality of life. Patients and caregivers can benefit from talking to family and friends, joining support groups, getting mental health counseling, or engaging in activities that make them happy. Here are some ways to show support to someone you care for. 

Talking to Friends, Counselors, and Parents: A Vital Coping Strategy to CKD

Talking to friends, counselors, and parents is a way to cope with stress and change that come with CKD is through open. Studies show that sharing your feelings and concerns can alleviate emotional burden. Engaging in conversations not only provides an outlet for expressing emotions but also helps build a support network.

Living with Someone on Dialysis? This is How You Reduce Stress For Them

The journey can be challenging for families and caregivers of someone living on dialysis. They have to take care of the physical and mental health of the patients as well as themselves, as the dialysis process can be emotionally draining for both. Studies in the Journal of Renal Care suggest that family members actively involved in the care of a dialysis patient need significant help for stress management. Here are some coping strategies that can benefit both caregivers and the patients undergoing dialysis. 

Mindfulness-Based Therapies: Mindfulness-based activities, such as meditation, deep breathing exercises, or yoga, have been shown to help reduce stress, anxiety, and depression in individuals with kidney disease, as well as their caregivers. These practices focus on grounding oneself in the present moment and accepting thoughts and sensations.

Stress Management Techniques: Both caregivers and the patients can team up in stress management techniques like progressive muscle relaxation, guided imagery, or journaling to cope with stress. These activities offer a way to release tension, manage negative thoughts, and promote a sense of well-being.

Support Network: Friends, family, or support groups play a significant role in offering emotional support and encouragement. Sharing experiences and concerns with others who understand what you’re going through can be incredibly helpful. 

Therapy or Counseling: Seeking professional help from a therapist or counselor can provide valuable support to the patients and the person living with them. Counselors develop coping strategies, help navigate emotional challenges, and address any mental health concerns that may arise as a result of dialysis.

Relaxation Techniques: Engaging in activities that promote relaxation, such as listening to soothing music, taking warm baths, or practicing aromatherapy, can help alleviate stress and promote a sense of well-being

Caring for Someone with Kidney Failure

Caring for someone with kidney failure goes beyond physical support. Emotional care plays a crucial role in their overall well-being. Here are some ways to provide emotional care for someone with kidney failure:

Empathy and Active Listening: Practice active listening and try to understand their emotions and concerns without judgment. Allow them to express their feelings freely and validate their experiences. Show empathy and let them know that their emotions are valid and understood.

Open Communication: Encourage open and honest communication. Create a safe space for the patients to share their fears, frustrations, and concerns about their kidney failure. Let them know that you are there to listen and support them through their journey.

Educate Yourself: Learn about kidney failure, its treatment options, and potential challenges. Understanding their condition allows you to provide better support and helps you empathize with their experiences. It also enables you to answer their questions and address any doubts they may have.

Be a Patient Advocate: Help the patient gather information about their treatment options, accompany them to doctor’s appointments, and take notes during medical consultations. Acting as their advocate empowers them and reassures them that they are not alone in their journey.

Offer Practical Assistance: Help them with practical tasks that can be challenging due to kidney failure. This could include driving them to places, grocery shopping, or managing medications. By providing practical help, you reduce their stress and show that you are actively involved in their care.

Encourage Self-Care: Remind them of the importance of self-care. Encourage activities that promote relaxation, such as engaging in hobbies, practicing mindfulness techniques, or taking breaks when needed. Support them in finding ways to reduce stress and improve their emotional well-being.

Connect them with Support Groups: Encourage them to join support groups or online communities where they can connect with others who are going through similar experiences. These groups provide an opportunity to share personal stories, exchange advice, and find emotional support from individuals who truly understand what they are going through.

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